Friday, April 30, 2010

Mommee's Letter to Samuel

Dear Samuel,

You are in the terrific twos! You are such an awesome little boy. So smart and learning more every day. You say the funniest things and are trying to learn knock-knock jokes but don't quite understand. "Knock knock." "Who's there?" "Daddy's home!" You are a kind and loving little boy with a love for others. You are determined yet keep a sweet spirit.

At this point in your life you have a deep interest in trains, big trucks, Hot Wheels cars and bounce houses. I'm still cool and can remove pain with just a simple kiss. You still have your favorite blanket and take a binky. It's OK. I know it will be gone before you go to kindergarten.

You are starting to notice that you are the only one in the house who gets hooked to machines twice a day and have to take pills before you eat but I don't think you care yet. Every once in a while you say "Mommy's turn!" and put the mask to my face, in which I oblige you for a few minutes because I want you to feel like this is normal. Because it is normal. For you. Until we find a cure, you will do this at least twice a day for the rest of your life. Until that day, you'll take a handful of pills several times a day and always look for the highest calorie item on the menu.

One thing you've been saying lately that I wish I could permanently remove from your vocabulary is "I can't do it." Don't ever say you can't do it. Say "I need help." There will be people who mean well but will quickly tell you you can't do something. Don't listen to them. You can do, and will do, whatever you want to (kinda like you do now because you are two!). Whenever that day comes, and it will, please remember this verse: For I can do everything through Christ, who gives me strength (Philippians 4:13).

I love you so very much. You brighten each day and renew my hope for the future. You are such a refreshing face for those around you. I pray for nothing but the best for you every day and will fight for it with everything I have.

You are such a precious gift from God and you always will be.

With all the love in my heart,


  1. Fabulous! Erica, you are a great mom and Samuel is one of the best boys in the world. :O) I am blessed to know you both.

  2. Happy Mother's Day to you!

  3. Erica - I just found this blog! This post brought tears to my eyes! I so much admire you and Kevin and your desire/efforts to help Samuel have a "normal" life. Please know that when I ask questions, it is because I am truly interested and care. I had a close friend as a child who had M.D. I have a tremendous amount of respect for children and parents who go through these things! Samuel is a precious child and I love him! (and both of his parents!)

  4. Sis Kelly this blog brought me to tears,Samuel is a very Blessed child,to have a mother who never gives up,and is very strong in her faith,
    just always remember, when we are weak he is strong, God Bless you and your precious family
    Sis Rachel


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