Monday, June 28, 2010

Here we go again - And a BONUS rant!

First, I want to offer my condolences to the Jones family. Conner, seven years old with CF, went to his permanent home with Jesus a few days ago. Mere words escape me and seem so frivolous anyway. To say "Conner lost his fight" implies that he didn't fight hard enough or he didn't do enough. Even though Conner was only here for a short time, his life touched many. His spirit, determination and caring ways are an inspiration to many who have been here long enough to have learned the lesson long ago.

I can't imagine loosing my child to such a combination of cystic fibrosis and Prune Belly Syndrome, as Sarah, Conner's mother, has. Again, not even sure how to put my thoughts in words. It's not total sympathy because no doubt Conner is in a better place were he doesn't have to fight to breathe or even worry with having the strength to move. But our selfish, earthly ways can't help but want to keep our little ones with us as long as possible. I simply pray that God would continue to comfort the entire family through this time...that He will give them peace.

As they say on the Today show "On a much lighter note..."

We've started gearing up for the first TeamSamuel silent auction in the fall. Funds raised from the auction will go toward the Cystic Fibrosis Foundation. I'm hoping for some great donations and lots of eager bidders. :)

During lunch with my friend on Friday, Samuel let out a big ... cough. A big, fat, wet, productive cough. While I noticed, I didn't want to hear it. He's not supposed to cough yet. But he did. And he has been. By this evening, he's got a (clear) runny nose that is like a faucet, red, watery eye and a 101.3 fever. After a long nap this evening, he gained his appetite and got back to his normal, 2 year-old ways. Hopefully it's just a quick bug that he'll be able to fight off on his own. That would be ideal. But, as timing would have it, we have a hypertonic saline study visit on Tuesday where he will see his regular CF doctor. She will give us some direction as to how to treat this. And, not that I want him to be sick, but by Tuesday, if it's something to really worry about, it will be obvious. Right now, it's still a cold (as if that's not bad enough).

Last post I asked the question: When did it become OK for moms to judge other moms for the things they do or decisions they make? Either I'm oblivious to it, or just don't care, but it hit me a few weeks ago that some moms out there feel like they are constantly being judged by other moms. The particular situation my friend and I were discussing had to do with nursing in public. She had chosen to not try breastfeeding, preferring to formula feed her two children. Now, after the research I did, I chose to breastfeed (sorry if this is too much info, but I'm getting somewhere). Honestly, it was one of the best decisions I've made, but it was right for me. Other moms think other things are better for them. Good for them. I am not the wellness police and while I do not understand why a mom wouldn't even try it, I'm not going to think less of her or judge her for her decision. Maybe I think others think like me. 

But then a funny thing happened: I started to notice it going on around me. I follow a popular mom blog on occasion and saw a picture she had posted of her 4 children, all under 4 (I think) at the Childrens Museum. Her children seemed clean, fed, dressed and having fun learning at the museum while spending time with their 1 mom. I mention the ration of children to mom because I have 1 of my own and keep one more most weekdays, ages 2 and 9 months. While I'm not ragged, it's a bit of a handful and it takes some planning, not to mention tons of patience, for a trip to the library. So, from my persepctive, you can imagine my awe that she would take 4 children, by herself, to a place where kids run and play and all WITHOUT a stroller. As I saw the picture, something like "SuperMom" crossed my mind (disclaimer: I don't think most mom bloggers are SuperMoms. But some have it together and I admire that. I wouldn't call someone I don't know personally, have never met, a SuperMom. The ONLY SuperMom I know is my very own mother. And you'd say she is SuperMom too, if you know her.) Back to the picture. Another one of her followers was the first to make a comment. Unfortunately her comment was something to the effect of "Please tell me that's not one of those awful kid leashes that only terrible moms use when they can't control their children." Maybe not exactly like that, but that's what I read. I thought, "Here is a mom of 4, taking her kids to a museum. They are having fun. They are under control. The leash is off. It looks like he's wearing a backpack. Give the mom a break." And that was just one instance. It's popping up everywhere and it's driving me nuts. To me, it's not OK to make a mom feel like her best efforts or her decisions are good enough for her children. Not sure about you, but I didn't get the manual from the hospital so I'm still trying to figure it all out. Sometimes I get it wrong (usually on a daily basis) but I learn from those mistakes and move on. You know, we all are learning. All that being said, why can't we just give each other a break every now and then. And if you see my son in one of those terrible backpack kiddie leashes that help keep curious kids from running away on the day I decide to brave the childrens museum with my one (possibly 2) child(ren), you can just smile and say "Looks like you guys are having fun today!" because we probably are.

Monday, June 14, 2010

Better step it up!

It only takes a little act of kindness by someone to remind me I better step it up on the updating of my blog. Apparently, small favors are repaid by posting someone to a blogroll. I had no idea. And because I'm now in another (or maybe this makes one...) blogroll, I should probably update said blog.

So, here's what's happening the land of the CF Mommee:

1. We have held off on transitioning CF Boy to a toddler bed for several reasons. 1, he has no reason to get out of bed in the night as he is not yet potty trained. Yet. We are making headway. And this is good. And 2, um, well, who really wants their 2 year-old trashing the house while the parents are trying to sleep. That's what I thought too. But, potty training is going fairly well. First stop out of bed in the morning is the potty. He's got it. During church yesterday he said he had to go to the potty, and he did! By the way, I take those requests very seriously because I don't want him to think he's got to tell me 50 times before I take him. And I really am getting sick (yes, sick) of changing poopy CF diapers. Not sure how we can cover the entire spectrum of poo consistency in one BM, but... Yeah, enough about poo!

2. Since I've been trying to tackle all toddler issues at once, issues like big-boy bed, potty and ditching the binky, I'm making headway on the other, not mentioned above. Binky at bedtime only. He can sound so pitiful asking for it. Yes, I know. When they ask for it then it's time for it to go. He says "I need a binky! Pleeeeaaase?" I try to remind him, only at naptime. Then say "Are you ready to take a nap?" His response is something like. "I'm sleepy. You sleepy too?"

3. Class. He's got Sunday School down so I thought it would be good for him to be in a toddler class. I signed him up for Storytime Arts & Crafts. One day a week for 45 minutes. NOT a Mommy-And-Me style class. First week, he made it until the last 5 minutes then the teacher came and got me. Not too bad. He just wanted me in there while he colored his picture. Second week he stood at the door and cried. 20 minutes in, the teacher came and got me. Tomorrow is week 3. We will see if they change it to a mommy-and-me class yet!

After prayerful consideration about the needs of CF Boy, and the mental needs of this CF Mommee, we have decided to give homeschooling a whirl. That makes it sound like I decided to do this on a whim. Not so. I think most people consider homeschooling because they want to make sure their children are taught what is honest, true, pure, and keep them from the dangers of school like exposure to drugs, violence, and other potentially harmful moral issues. I realize I'm making some very broad generalizations but just stick with me for a moment. Along with my husband, I am considering homeschooling the boy because I want to keep him from harmful germs (as much as possible) and knowing that, one day, hospitalizations will come and school will still be there, hospital or not. What better way to keep up with school work than if it's already at home! Oh yeah, and there are the other things that "normal" parents consider as well. I think we can all agree we just want what's best for our kids.

Which reminds me... Please leave me your thoughts on the following, uh, thought:

When did it become OK for moms to judge 
other moms for the things they do or decisions they make?

Just to be clear, I don't feel I have been wrongfully judged. Please leave me a comment! I'd love to know your thoughts!

And because the update wouldn't be complete without some photos...

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