Friday, September 4, 2009

Five for Friday - Ways to spend the day off

Recently, I have been thinking about incorporating a theme to my blog instead of just the usual brain dump on a random day. I'll probably still have a random theme from time to time, but today, it's Five-for-Friday. And today's subject is my five ways to spend the day off with my son, since that's what Friday's have been as of late.



1. Get a late start and take our time with morning treatments. *Note: This is not a good plan. It's best to do this early when Samuel is still sleepy and less willing to fight. Like here:


2. Make pancakes for breakfast (which is turning into brunch. See #1.)

3. Keep my promise to go to the splash pad at local shopping center. Hopefully the big bully kids are all in school. HA!

(Thanks to Lucy's mom - the OTHER Lucy's mom - for sharing the high-calorie popsicle recipe! Samuel loves them!)

4. Finally put my pork roast in the crock pot so I don't have to scramble to make dinner tonight.

5. Clean up the muddy paw prints through my house. Lucy insisted on going out late last night after it rained. Since our back "yard" is just mud, this wasn't a good plan.

So there you have it! The first installation of Five-for-Friday and even a five picture bonus!

Have a blessed day.


Thursday, September 3, 2009

Thankful Thursday

In no particular order:

1. Egg whites in a carton
2. Instant oatmeal
3. Super Glue
4. Rotisserie Chicken
5. Johnson's Bedtime Bath
6. God's love
7. 1 little blond-haired boy
8. My house
9. My job - and the ability to work
10. Coffee

*this could change in 5 minutes.

Wednesday, September 2, 2009

Why socialized health care is like coffee….sorta.

While standing in line behind my co-worker for access to the one coffee maker in our office, I had a thought: I hope I like standing in line.

A few months ago, the powers that be decided we should purchase one of those fancy single-cup coffee makers instead of springing for gourmet coffee-shop bought coffee every Friday. This way, each of us could get what we wanted every day and save the company some dough. Sounds like a great plan. And it is a great plan because it’s coffee and I like coffee.

There are just a few issues.

1. The quality just isn’t the same. Nothing tastes better than sipping a fresh, custom-made, toffee-nut Americano with a touch of half & half and a Splenda from a cup with a green logo and topped with a white plastic lid. Nothing. Yeah, the fancy coffee maker provides fresh coffee. I get an adequate cup of hazelnut-flavored brew, and am provided with enough Coffee-Mate and Splenda to accommodate my particularly sweet flavor preference. It’s good enough to get me through my morning.

2. When we got the fancy coffee maker, we realized we could brew coffee, tea, and hot chocolate with our machine. The one catch is, we had to buy all the coffee and cream and sugar and Splenda and the new machine. Quite an investment for our little company! We have to store it all too. When someone wants some hot chocolate, hopefully we have it in stock. If not, we have to wait for the hot chocolate to become available…sometimes up to a week for delivery! When you want/need hot chocolate now, getting it a week later just won’t do!

3. Really, it’s just one machine. We bought one machine. But early in the morning, when people have left their personal coffee at home to drink the “free” (to them) coffee at work, there tends to be a log-jam at the coffee machine. It’s not really a big deal, it IS only a cup of coffee, but sometimes, you just can’t get that stuff fast enough. Maybe we should buy another machine for those times when we are wanting coffee at the same time, but that’s too much money and we don’t really have the room for it anyway.

4. Because I am the keeper of the order forms, I get to dictate what kind of coffee, tea, or hot chocolate we get. Sure, I can be nice and order what other like, but when it comes down to it, I order Daybreak Blend for everyone because it’s MY favorite and I think it should be his or her favorite too. What? You want TEA? Um, I’ll have to see if it’s in our budget to order another box of tea. Sorry, it’s not. Besides, you got your preferred flavor of tea last week, so let’s give those soda drinkers and chance to get what they want. Oh, that’s right, this machine doesn’t serve soda. Well, it’s still their turn to decide. You ran out of votes last week.

5. Oh, the options. Before the fancy coffee maker, I used to see those white cups with green logos nearly every day. Sometimes, two or three a day. But now, I go about a month before seeing a lonely green circle logo. I feel for the people who work at the store of the green logo because we are taking money out of their pockets. But are we? We still have the OPTION to go to the gourmet coffee shop with the green logo. In fact, it’s less than a mile away from the office. But why stop there and pay for coffee when I can get it for free at the office? I’m not personally paying for the coffee in the office. It’s the COMPANY coffee! Then I think: What if everyone got on of these fancy coffee makers in their homes and offices? What if it was required to drink some sort of brewed beverage every day and you could either get it with the coffee maker, or get it at the gourmet store? I know, for my budget, I’d choose the coffee maker. I can’t afford to go get a white cup with a green logo every day. How long before the option of going to the gourmet store wasn’t an option? They can’t operate if everyone chooses the fancy coffee maker. They have no income.

So how is this like health-care reform? Well, the quality of health care just won’t be the same. People won’t value it because they have no direct financial responsibility for it. They want a cup of coffee, I mean, they want to see a doctor, they just show up, stand in line, and get what they want. Say someone has a caffeine-deprivation related headache because they had to wait to long at the fancy coffee machine. They could demand to see a specialist for that headache because it COULD be a tumor.

The wait time would be extraordinary. There won’t be enough doctors to go around. Is that a good reason for no health-care reform, no. But it will happen. By some estimates, the time it takes to choose a primary care physician would go from three months to six months. That is not acceptable. What if the first choice doesn’t work out? Can you really wait six months to a YEAR to see a doctor?

With an impending government monopoly on health-care, it won’t take long until the check-writer, the government, dictates what we get. Just like me being the lone orderer of the coffee, some fat politicking slob will be telling me what they will and will not pay for my care. Next, they will be telling me what tests I have to have done and what choices I have to make to be fiscally responsible. Um, no. Unacceptable. I can see it now. Mandatory genetic testing on the unborn to see if they deserve life. If all is clear, great. They won’t be a drain on society. If there is a problem, then mom must have an abortion because no doctor will treat the baby. Talk about not treating a preexisting condition!

Having another option won’t be possible. Just like if everyone got a fancy coffee maker, gourmet shops will be put out of business, that’s exactly what will happen to private insurance. If we all chose the cheaper option, a logical decision, how long before that is the ONLY option? Not long, I promise you. And if you think the fancy shop was founded by a greedy old man, so be it. This is America. He had a dream. He saw an opportunity. He took a chance and he made money. Lots of money. Good for him! Go capitalism!

So, stick with me. When the gourmet shop goes out of business and we are all ordering our fancy coffee-maker cups, we’ve just given the maker of the cups the market share. They can now dictate what coffee cups are available and which are not. AND they can set their own price on the fancy coffee cups because they are the only place in town (or the internet) to get the fancy coffee cups. Should my favorite, Daybreak Blend, become very popular, what do you think will happen? Of course, the price will go up! Suddenly, I’m presented with two choices. I can either pay whatever price they demand for Daybreak Blend, or stop drinking Daybreak Blend. When I stop drinking Daybreak Blend because I don’t want to or can’t pay, then what happens? The maker will either lower the price, or say there is no demand for that particular flavor and no longer offer Daybreak Blend, further dictating what I can or can not drink. My choices just went down. It won’t take long for the other less popular flavors to fall off of the offerings menu and the cycle continues.

But enough about coffee. We all need to drink more water anyway. THIS is something no one can control the rationing of. Oh, wait, yes they can.

*SPECIAL NOTE: I love the company I work for and I'm grateful they would even offer the gourmet coffee once a week or the fancy coffee maker and supplies any time I choose. Any points made here are just for illustration and are not to be misread as disgrace, disgust (at the coffee situation) or any other negative thoughts or feelings toward the current coffee situation at my place of employment. THANKS!

Tuesday, August 25, 2009

Vegetables? FINALLY!

It's finally happened. Samuel wanted to eat veggies! After months and months of putting the on his plate/tray and watching them end up in Lucy's mouth (Lucy is our dog), he was shoveling them in like it was going out of style. Of course, they were smothered in butter. How do you eat YOUR veggies?

Some other quick tricks I've learned recently: Grating carrots into mac N cheese is a good way to sneak in some veggies, which, apparently, I don't have to do anymore! We really like Easy Mac because it's a great portion size for Samuel. Husband and I don't need to be eating mac N cheese as much as Samuel does. The cool trick, though, is to add a little heavy cream to the cheese mix. It makes the cheese sauce creamy, obviously, but not watered down. It's a great way to add extra fat and calories. I'll share more tips as I come across them.

The past few days, Samuel has been learning something new. Seems like it's been faster the past few days. Friday, he came home saying "You're BAD!" and pointing his little finger. I'm pretty sure he's seen his father say that to Lucy a time or two because we DO NOT say that to him. Miss Amy does not say that to him. Her words for unacceptable behavior are "That's naughty" My choice: "That's not nice" or "We don't do that." It makes sense because he's mostly telling the DOGS they are bad.

By Sunday, "You're BAD!" turned into "You! You're BAD! Alright?" This of course, was met with, "No, that's not alright. I'm good!" But, like I've heard, you can't reason with a toddler. This is still true, in case you were wondering.

Did I mention Samuel received a gift this past week? He brought home a Mr. Potato Head and was delighted to play with it. I could hardly believe my eyes when he was still sitting in the floor playing after about 10 minutes. And it was at that moment Mr. Potato Head went flying across the room. It does sorta look like a football...

In my last post, I mentioned my guest blog and compared to time when I had to give a speech. Now, for those who have asked, it was NOT a coincidence that I did NOT mention the topic of my speech. Those who know me and my family may know it already. But those who don't, well, you've already got enough information about my perspectives. There's no need to discuss anything else controversial.

Friday, August 21, 2009

You are in the right place

Recently I was taking a critical look at the blog and it was starting to bother me that everything was so, how do I say it, so...Uhhggg. It was brown. Very brown. Not really the right color for the mood of this blog.

A few weeks ago I declared I was taking a stand. While it may appear I haven't been doing much by the looks of the blog, I assure you, things have been brewing.

I was asked to guest blog for my friend Ronnie at RunSickboyRun. He recently updated his format to include a Sound Off Saturday and is showcasing some different perspectives on the issue of health care reform. You should pop over and take a look. And leave a nice comment for me! :)

Honestly, this has been a HUGE step for me. I normally don't get involved in any issue that is a bit controversial because I hate confrontation. In fact, during my public speaking class in college, one assignment was to take one side of a contentious topic and explain why we held those opinions. I really didn't want to participate in this assignment. This wasn't debate class, for goodness sake! Of course, it was required so I did, but it required taking some risk which I wasn't comfortable with. I just like to keep my opinions to myself than have confrontation. BUT, in this case, Samuel can't speak for himself; he relies on me to speak up for him and keep his best interests in mind.

What else is happening? Oh yeah, I'm going to D.C. I feel like the real life version of Legally Blonde 2. Somehow or another, I managed to get invited to participate in a press conference on this very topic. I'll be sure to post more details as I get them. Details such as time and place.

If you are coming here to check on Samuel, well, this is a bit of an update. Wednesday I got the call that I have been able to avoid for the past 21 months. Samuel's last throat swab at clinic grew a scant amount of pseudomonas. Today (since it's 1:45 AM and I'm still up with Samuel) we start Cipro and TOBI and he will be on those for the next two and four weeks, respectively. We've been very spoiled by our MDI with spacer instead of neb treatments. The new drugs have me bummed, for sure, but strangely enough, I'm more concerned about the mask/neb treatments on Samuel's mental well-being.

Thanks for checking in. I know I don't have pictures but that is because I'm on a new computer and have NO pictures of Samuel here. Sorry. Maybe by my next post I'll have it together. Maybe.

Monday, August 17, 2009

When it really comes down to it

...we are so blessed. I've been thinking lately about what a miracle Samuel is. He is truly a gift from God. There is no other way around it, he's a miracle. It's just another benefit that he has CF.

A benefit? What, you say? Surely, Mrs. Samuel's Mommy, you can mean that. Well, I do. See, we have the opportunity to teach others about all kinds of things like, faith and trust, being obedient, and mostly, being thankful for what we have. On Samuel's last clinic visit, I was out of town. But every time we go, I'm reminded of how fortunate we are. We usually have to talk about poop and get new instructions on how to help Samuel get those cherished thigh rolls. We might get a new prescription for a new drug Samuel hasn't been on before or information about a hypertonic saline study. 

Whatever it is, it can sometimes be overwhelming. 

BUT, when we leave, I ALWAYS see another little boy or girl at Phoenix Children's Hospital who doesn't get to go home that day. Sometimes they have a feeding tube and are in a wheelchair. Sometimes they've endured chemo and have lost every strand of hair. It always touches my heart because on THAT day, I get to take my baby back home. We are only there for a visit that day. What a blessing.

Thank you, God, for trusting Kevin and me with this opportunity to be a light for others who don't know you. While admitting we are far from perfect, help us to be a good example. Thank you for this little boy you have given us because he truly is a miracle and a gift from you. Samuel is yours. And thanks for letting me hold him for just a little while.

Thursday, August 6, 2009

still working...

Just wanted to let you know, I'm working on this healthcare thing. I'm a bit busy right now but things are cooking.

I've been invited to participate in a press conference in DC next month on behalf of families just like mine. It's an honor to take a stand for what is good and right for my family and I'm not ashamed to be counted.



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